Moving On Newsletter - Autumn 2021
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Professor Richard Gearry
Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, paediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients.
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Katrin Buerkle - Assistant Research Fellow, Department of Medicine University of Otago
Traditionally, IBD clinics have been run via face-to-face consultations. However, over the last decade, the integration of telemedicine into clinical care has gained momentum and the Covid pandemic has led many healthcare providers to consider alternative modalities for service provision.
Professor Andrew Day - CCNZ Trustee
One of the key components of the Camp Purple Live program is the Parents Seminar.
Susan Wenzler - CCSG Coordinator, Rotorua
Susan Wenzler has kindly volunteered to become the new coordinator for the Rotorua group. Here's a little about Susan.
Crohn's & Colitis New Zealand Charitable Trust
CCNZ appreciates and thanks the IBD professional community for all their support.
Dr Richard Stein - Chair CCNZ
The announcement by Minister of Health Andrew Little on 22nd April promises major changes over the next few years.
On 2 December 2020 Radio NZ and the Dominion Post covered the launch of CCNZ Youth Ambassador Nicole Thornton’s “I Can’t Wait” campaign.
Meet Samantha Wilkinson, the new Gastroenterology Clinical Nurse Specialist, who covers IBD and also Hepatitis C, for Lakes District Health Board.
Save the date! 30th of July 2021 to the 1st of August 2021.
Bianca Howe is Assistant Buyer at Shine On and has been in the position for nearly a year. Bianca is also an IBD patient.
CCNZ works across the country to improve the lives of people affected by IBD, but we're only able to get there with your help and support.
Hollie Asprey - Registered Psychologist
An eloquent quote from one of our young Camp Purple Live attendees from 2021 reads “It’s not the disease that defines you, but you that defines the disease.”
Fletcher Carey - Camper 2021
My name is Fletcher Carey and I have Crohn's disease. I was diagnosed when I was 8 years old and I'm turning 18 this year.
Emma Taylor - CCSG Coordinator, Wellington
Emma Taylor is from Wellington and was diagnosed with ulcerative colitis in March 2015. Since then, she's had 3 surgeries, and now lives permanently with a J Pouch. Emma enjoys camping, fishing, exploring nature and doing the odd project around the house.
CCNZ are working hard to ensure that the support groups are all getting active and supporting their communities. If you are feeling up to it, please head along to an event, your community would love to meet you!
Dr Richard Stein - CCNZ Chair
On 2 December 2020, David Seymour, leader of the ACT party, received our petition asking Parliament to fund ustekinumab. The petition has over 30,000 signatures and now sits with Parliament’s Petition Committee who will determine its fate.
Brian Poole, QSM - Trustee CCNZ
CCNZ commissioned economist Dame Suzanne Snively to analyse the economic impact of IBD in NZ. Her report entitled “Reducing the Growing Burden of IBD in New Zealand” was presented at a function held at Parliament in November 2017.
World IBD Day is the 19th of May 2021, so in celebration of this day we are planning an event at Parliament for the evening of the 24th of May 2021. Save this date and join us in celebrating World IBD Day! More details will follow soon!
Danielle Le Heron - CCSG Coordinator, Waikato
Hello, I am Danielle Le Heron and the coordinator for the Waikato CC Support Group since 2019.
Would you like to come and experience Camp Purple Live for a day?
If you're in Melton this weekend, make sure you pop along and support Market@254 and support CCNZ!
Some rights reserved Crohn's & Colitis New Zealand Charitable Trust , 2024
