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Crohn's & Colitis New Zealand Charitable Trust

Moving On Newsletter - Summer 2022 / 2023

Contents

Meri Kirihimete from the CCNZ Board.

From the Chair.

by Dr Richard Stein - Chair, Crohn's & Colitis New Zealand Charitable Trust

With the Season of Giving upon us, for once, it is nice to be on the receiving end.

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Starship Children's Hospital

Starship to hire a paediatric IBD nurse and clinical psychologist!

by Dr Richard Stein - Chair, Crohn's & Colitis New Zealand Charitable Trust

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Cotton-Top Tamarin Monkeys

What do we have in common with Cotton-Top Tamarin Monkeys?

by Dr Richard Stein - Chair, Crohn's & Colitis New Zealand Charitable Trust

The next time you are at the zoo, stop and spend some time with the cotton-top tamarin monkeys.

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Camp Purple Live 2023 - new dates

Camp Purple Live 2023!

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

We have 100 campers registered to attend our eighth annual Camp Purple Live at Living Springs in Christchurch from the 21st – 26th of January 2023.

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The research team in Christchurch are running an online study with children going to Camp Purple in January 2023… and their parents too. 

Camp Purple Research.

by Angharad Hurley (Vernon-Roberts). MSc, PhD - University of Otago, Christchurch

Hello Camp Purple kids and parents!

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New Zealand Inflammatory Bowel Disease Nurses Group Logo.

‘We need more IBD Nurses’

by Marian O’Connor - On behalf of the NZIBDNG Committee

A recent audit of Inflammatory bowel disease (IBD) nursing practice in New Zealand revealed a severe shortage of nurses’ country wide. Despite this shortage, 100% of the IBD nurses are given only part-time, rather than full-time, positions (typically 0.4 – 0.6 FTE*). Compounding the problem is that IBD nurses often have other clinical responsibilities such as liver care, endoscopy, and general gastroenterology which takes significant time away from their IBD practice.

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Meet the IBD Clinical Nurses Specialists for Capital & Coast, Wellington.

Meet the IBD Clinical Nurses Specialists for Capital & Coast, Wellington.

by IBD Clinical Nurse Specialists - Te Whatu Ora, Capital and Coast

Kia ora, we are the Inflammatory Bowel Disease Clinical Nurse Specialists for Te Whatu Ora, Capital and Coast. We offer support, education, advice and guidance and we look forward to working with our patients and their whanau.

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Living with IBD - seminar & workshop September 23rd - 25th, Novotel Cathedral Square.

Living with IBD - seminar & workshop

by Belinda Brown - Crohn's & Colitis New Zealand Charitable Trust

In September 2021 we held our second “Living with IBD – seminar and workshop” in Christchurch for young adults between the ages of 18 and 40.

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Support Group Coordinators Conference

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

Crohn’s and Colitis New Zealand works with 13 support groups throughout New Zealand.

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Kerry and her 14yr old with Crohn's.

Meet Kerry, the coordinator for our Bay of Plenty Support Group.

by Kerry Styles - Bay of Plenty (Tauranga) CCSG

Hi, I'm Kerry and I run the Tauranga Crohn's and Colitis Support Group.

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Korrin's incredible journey

Korrin Barrett’s (life unlimited) story.

by Korrin Barrett - Patient and Motivational speaker

Korrin tells people “There are three choices when something rocks your world; give in, give up, or give it all you got. I chose the latter".

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Crohn's Colitis Cure

What is CCCare?

by JOSEPH PIPICELLA - HEAD OF OPERATIONS, CROHN’S COLITIS CURE

Crohn’s Colitis Cure has developed a new custom-built cloud-based eHealth platform for Inflammatory Bowel Disease called Crohn’s Colitis Care (CCCare).

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Kade West-Hill

Fundraiser!

by Kade West-Hill - Crohn's disease patient

Kade West-Hill and his family decided to fundraise for Camp Purple Live, here's why.

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Interview with Jesse Sigurdsson of Shining Peak Brewery and why they chose to support Camp Purple Live.

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

Shining Peak Brewing is a Taranaki craft brew pub and eatery. They are running a fundraiser for Camp Purple in January 2023.

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We need your help!

WE NEED YOUR HELP!

by Belinda Brown, CEO - Crohn's & Colitis New Zealand Charitable Trust

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I Can't Wait Cards.

I Can't Wait campaign

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

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The new and improved Living with IBD Handbook!

Our new and revised Living with IBD handbook is out now!

by Crohn's & Colitis New Zealand Charitable Trust

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Thank you to all our Kind and generous supporters!

Thank you to all our Sponsors!

by Crohn's & Colitis New Zealand Charitable Trust

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Our Professional Members 2022/2023.

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ appreciates and thanks the IBD professional community for all their support.

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TOGETHER, WE CAN MAKE A DIFFERENCE!

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ works across the country to improve the lives of people affected by IBD, but we're only able to get there with your help and support.

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Crohn's and colitis support groups

Want to find your nearest support group?

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ are working hard to ensure that the support groups are all getting active and supporting their communities. If you are feeling up to it, please head along to an event, your community would love to meet you!

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