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Crohn's & Colitis New Zealand Charitable Trust

Moving on Newsletter - Winter 2023

Contents

Dr Richard Stein, Chair of CCNZ delivers his speech.

From the Chair.

by Dr Richard Stein - Chair, Crohn's & Colitis New Zealand Charitable Trust

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Walking down Lambton Quay

A primer on the new biologicals.

by Dr. Richard Stein

Most people who read this newsletter are probably aware that two new medications are now funded to treat Crohn’s disease and ulcerative colitis.

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Professor Catherine Stedman - President of the New Zealand Society of Gastroenterology.

New Zealand Society of Gastroenterology Update

by Professor Catherine Stedman - President New Zealand Society of Gastroenterology

Kia ora koutou

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New Zealand Inflammatory Bowel Disease Nurses Group Logo.

‘Update from the IBD Nurses’.

by Marian O’Connor - Chair NZIBDNG & Crohn’s & Colitis CNS – Taranaki

We are delighted to welcome two new committee members to the New Zealand IBD Nurses Group, Donna Howe from Whangarei as Secretary and Nideen Visesio from Auckland as our Education Lead.

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Stephanie Brown.

Diet, micronutrients and Crohn disease: summary of a recent study.

by Stephanie Brown, NZRD PhD candidate, Paediatric Gastroenterology Dietitian & Professor Andrew Day, MB, ChB, MD, FRACP, AGAF

A recent study conducted in Canterbury assessed the dietary intakes and the blood micronutrient status of children with Crohn’s disease (CD) compared with their healthy siblings living in the same household.

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Catherine Wall PhD NZRD – IBD Dietitian (Christchurch) and Research Fellow, Department of Medicine, University of Otago Christchurch

Embracing Autumn's Bounty: Exploring the Delights of Pumpkin and Its Health Benefits

by Catherine Wall PhD NZRD – IBD Dietitian (Christchurch) and Research Fellow, Department of Medicine, University of Otago Christchurch

I, and maybe some of you too, get quite excited about autumn and winter produce!

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Vitamin D

Answering your questions about Vitamin D for people with IBD.

by Dr Angharad Hurley, Professor Andrew Day University of Otago (Christchurch).

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University of Otago logo.

Current state of dietetic services for inflammatory bowel disease patients in New Zealand: Survey Results and Research Highlights.

by Nicky McCarthy - NZRD Dietitian, Nutritionist

Thank you to everybody that completed the survey about dietetic services in IBD back in 2020.

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Brooke
van Velden, ACT Party Deputy Leader and MP; Nicole Thornton, Ambassador; Mayor
of Ashburton, Neil Brown; and Charlotte Livingstone, Youth Ambassador

Crohn’s and Colitis New Zealand Charitable Trust Announces Two New Ambassadors

by Belinda Brown - CEO, Crohn's and Colitis New Zealand Charitable Trust

We are pleased to announce the appointment of two new Ambassadors of our organisation.

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Charlotte Livingstone - Youth Ambassasor

Spreading Awareness and Making Strides: Updates on Charlotte's Efforts and the 'I Can't Wait' Campaign

by Charlotte Livingstone - Youth Ambassador Crohn’s and Colitis NZ.

Over the past few months, I have had the opportunity to talk to four different organisations.

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Cover art for the leaflet by Sewart Gollan - Illustrator.

Embracing the Blessings of Living with IBD: Highlights from World IBD Day.

by Nicole Thornton - Crohn's and Colitis New Zealand Ambassador

May 19th is a special day for all sufferers of Inflammatory Bowel Disease, worldwide.

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Blo
Karting

Camp Purple Live, 2023: Empowering Children with IBD for a Life Beyond Limits

by Belinda Brown - CEO - Crohn's and Colitis New Zealand Charitable Trust

Camp Purple Live, sponsored by Crohn’s & Colitis New Zealand, is an annual six-day camp designed specifically for children and teens with Crohn’s disease and ulcerative colitis.

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Brian Poole, QSM.

Founder of Crohn's and Colitis New Zealand Trust Steps Back After 13 Years.

by Belinda Brown - CEO, Crohn's and Colitis New Zealand Charitable Trust

Crohn's and Colitis New Zealand Charitable Trust was established in February 2010 by Brian Poole, QSM, with the assistance of a small Board and his wife, Janet.

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Parent & Caregivers' Seminar

We are excited to announce the dates of the 2023 Camp Purple Live Parent & Caregivers' Seminar.

by Belinda Brown - CEO, Crohn's & Colitis NZ Charitable Trust

29th July 2023 - Wellington!

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Dates released, applications open!

REGISTRATIONS FOR CAMP PURPLE LIVE 2024, NOW OPEN!

by Belinda Brown, CEO Crohn's and Colitis NZ Charitable Trust

9th - 14th January 2024 at El Rancho, Waikanae 5036

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Shore Dance teachers and students in their purple wear.

Embracing the Purple Spirit!

by Whitney Featherstone – Shore Dance

A Dance Studio's Fundraising Success for Crohn's & Colitis NZ.

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Teresa Grimshaw and Lisa Clough, the driving force behind the Wairarapa Group.

Building Strength and Support: Introducing the Wairarapa Support Group for Crohn's and Colitis

by Crohn's Colitis

We are Teresa and Lisa who run the Wairarapa Support Group.

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Tanya and her children.

Meet Tanya, our new Coordinator for the Manawatu – Whanganui Crohn’s & Colitis Support Group

by Tanya Smith – Manawatu – Whanganui CCSG

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We are looking for volunteers to help with these Support Groups.

WE NEED YOUR HELP!

by Belinda Brown, CEO - Crohn's & Colitis New Zealand Charitable Trust

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Camp Purple Live 2023

A thank you to all our supporters!

by Crohn's & Colitis New Zealand Charitable Trust

We would like to publicly thank and acknowledge all of the organisations that have generously supported Crohn's & Colitis NZ this year.

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Crohn's and colitis support groups

Want to find your nearest support group?

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ are working hard to ensure that the support groups are getting active and supporting their communities. If you are feeling up to it, head along to an event. Your community would love to meet you!

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Our Professional Members 2022/2023.

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ appreciates and thanks the IBD professional community for all their support.

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I Can't Wait Cards.

I Can't Wait campaign

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

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TOGETHER, WE CAN MAKE A DIFFERENCE!

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ works across the country to improve the lives of people affected by IBD, but we're only able to get there with your help and support.

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The new and improved Living with IBD Handbook!

Our new and revised Living with IBD handbook is out now!

by Crohn's & Colitis New Zealand Charitable Trust

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