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Crohn's & Colitis New Zealand Charitable Trust

Moving On Newsletter - Summer 2021/2022

Contents

Dr Richard Stein - Chairman of Crohn's & Colitis NZ 

From the Chair - Chairman's Report.

by Dr Richard Stein - CCNZ Chair

The New Year is always a time of reflection on what happened over the past year, what we expected to happen, and what we hope will happen over the coming months.

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Living with IBD – seminar & workshop

by Dana Smith - CCNZ Trustee, RN

In July 2021, between Covid lockdowns, we managed to hold our first ever seminar and workshop for young adults with IBD.

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#wecantwait!

Update on the #wecantwait petition.

by Dr Richard Stein - CCNZ Chair

In June 2020, tired and frustrated waiting for a decision by Pharmac to fund the desperately needed medication ustekinumab (Stelara), a CCNZ subcommittee was formed to petition Parliament to directly fund the drug.

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Quality of Life Study

Quality of Life Study

by Crohn's & Colitis New Zealand Charitable Trust

Attention all IBD patients who have ever been treated with a biological medication. *

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Camp Purple Live 2022

Update on Camp Purple Live 2022 – 1st December 2021

by Professor Andrew Day - Camp Committee Chair / Belinda Brown - CEO, CCNZ

We are very aware that some of our campers, parents and volunteers have questions about how Covid might affect Camp Purple Live 2022.

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Jake about to head down the zipline

First time camper recounts his experience at Camp Purple Live 2021.

by Jake, Camper, Camp Purple Live 2021

This was Jake's take on his first experience at Camp Purple Live in 2021.

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Some if the IBD Nurses from around the country.

We need more IBD Nurses in New Zealand.

by Marian O’Connor, Clinical Nurse Specialist – Crohn’s & Colitis / Taranaki Base Hospital, New Plymouth

Marian O’Connor - On behalf of the NZIBDNG (New Zealand IBD Nurses Group). Clinical Nurse Specialist – Crohn’s & Colitis / Taranaki Base Hospital, New Plymouth

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Dr Angharad Hurley, Professor Andrew Day -  University of Otago (Christchurch) 

Learning self-management of your IBD.

by Dr Angharad Hurley, Professor Andrew Day - University of Otago (Christchurch)

IBD treatment can be complex. It can involve medications, appointments, laboratory tests, and x-rays to name just a few.

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Belinda Brown our new CEO.

Belinda Brown, our new Chief Executive Officer.

by Dr Richard Stein - CCNZ Chair

Belinda Brown is many things to different people. Friend, co-worker, camp-Mum, former Trustee and Operations Manager, and, now, Chief Executive Officer of Crohn’s and Colitis New Zealand.

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New Handbook - Coming Soon!

We have been very busy revising and updating our Living with IBD Handbook.

by Crohn's & Colitis New Zealand Charitable Trust

We hope to have these printed and delivered to your gastro department soon!

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Professor Richard S Stubbs MD, FRCS, FRACS - Managing Director & Investigator, P3 Research Ltd

Clinical Trials in Inflammatory Bowel Disease - Help yourself and others.

by Richard Stubbs MD FRCS FRACS, Managing Director and Investigator, P3 Research Ltd

Some years ago, the emphasis in ulcerative colitis and Crohn's disease research was in the area of biologics for severe disease, which otherwise might have required urgent surgery.

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Rachel O'Boyle - Health Coach and Mindfulness Facilitator

Intro to Mindfulness & IBD.

by Rachel O'Boyle - Health Coach and Mindfulness Facilitator

Hey guys! I’m Rachel. I’m a Health Coach and Mindfulness Facilitator. Last month I hosted an Online Workshop on Mindfulness and IBD.

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Christina the face of the Southland CCSG

Introducing Christina and the Southland Crohn’s and Colitis Support Group.

by Christina Paterson - Coordinator for the Southland CCSG

Hey, I’m Christina and I run the Southland Crohn’s and Colitis Support Group.

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Bobbi Laing and Helen Millar form Auckland CCSG, enjoying some dessert at Camp Purple Live.

Introducing Auckland CCSG.

by Helen Millar & Bobbi Laing - Coordinators for Auckland CCSG

Hi everyone, I’m Helen Millar and I help run the Auckland Crohn’s and Colitis Support Group (CCSG) alongside Bobbi Laing and our committee.

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Donovan with his sister, Elliot Neill.

We spoke to Donovan Neill about why he is fundraising for CCNZ.

by Donovan Neill - Family member of IBD patient

Donovan Neill, or Dono to friends and family, is running the Auckland half marathon in support of Crohn’s and Colitis New Zealand Charitable Trust.

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Fundraising for CCNZ - Luke White

by Luke White - Patient

Kia ora koutou. My name is Luke, and I am a 21-year-old Parliamentary Advisor based in Pōneke, Wellington.

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Our Professional Members 2021/2022.

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ appreciates and thanks the IBD professional community for all their support.

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Thank you to all our Sponsors!

by Crohn's & Colitis New Zealand Charitable Trust

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From one of Camp Purple’s supporters:

by Crohn's & Colitis New Zealand Charitable Trust

Kate Spence is the head of marketing at Nuzest, a company that is donating to Camp Purple Live 2022. We wanted to ask why?

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TOGETHER, WE CAN MAKE A DIFFERENCE!

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ works across the country to improve the lives of people affected by IBD, but we're only able to get there with your help and support.

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Crohn's and colitis support groups

Want to find your nearest support group?

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ are working hard to ensure that the support groups are all getting active and supporting their communities. If you are feeling up to it, please head along to an event, your community would love to meet you!

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