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Crohn's & Colitis New Zealand Charitable Trust

Moving On Newsletter - Summer 2020/2021


We Can’t Wait Campaign - #wecantwait!

by Dr Richard Stein - Chair

The We Can’t Wait campaign started at the end of the Covid lockdown. CCNZ, through our National IBD Working Group, had been meeting regularly with Pharmac for over a year.

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Dr Richard Stein - Chairman of Crohn's & Colitis NZ 

From the Chair - Chairman’s report.

by Dr Richard Stein - Chair

In 2020 we had to deal with the repercussions of Covid and worries about being immunosuppressed. People lost jobs and incomes.

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Nicole even made the Daily Quiz on Stuff.

I Can't Wait Campaign Launch.

by Dr Richard Stein, Chair

In January 2017 12 year old Nicole Thornton petitioned Parliament, seeking access to workplace toilets for people with medical conditions when no public toilet was available.

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Camp Purple Live Update!

by Professor Andrew Day, Camp Committee Chair

It’s now just a couple of weeks to go until we head off to Camp Purple again!

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Anna Scanlen

Thank you to Anna Scanlen.

by Dr Richard Stein, Chair

Anna Scanlen is well known to most people with IBD in Wellington.

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Jeff Parker - Hurford Parker Insurance
and Mortgage Brokers

Interview with Jeff Parker of Hurford Parker Insurance and Mortgage Brokers and why they chose to support Camp Purple Live.

by Jeff Parker / Belinda Brown

Jeff Parker created an insurance broking business in Hawkes Bay with the late Jim Hurford, 26 years ago. He is also a patient with ulcerative colitis.

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Patient experience of dietetic care in New Zealand.

by Nicky McCarthy NZRD, Student, Master of Health Sciences Programme Dept of Medicine, Christchurch University of Otago

Nutrition is an important aspect of the treatment and management of IBD.

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2020 Crohn’s and Colitis Support Group Survey results.

by Anna Scanlen

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Meet Nelson’s and Manawatu’s New Support Group Coordinators.

by Hettie Arends - Co-opted Board member

It is my pleasure and privilege to introduce two new Support Group Co-ordinators - Birte Kleinloog and Regan Harvey, who are restarting groups in Nelson and the Manawatu, respectively.

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The Gingerbread Christmas House, supporting Camp Purple Live 2021.

The Gingerbread Christmas House in Canterbury supporting Camp Purple Live again.

by Diana - The Gingerbread Christmas House.

A Christmas themed event in Canterbury is once again supporting Camp Purple Live this December.

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Zuru Competition during lockdown

Lockdown Competition and Camp Purple Live Hoodie Design.

by Belinda Brown - Operations Manager

2020 has certainly been an eventful year with lots of uncertainty and disruption to many households.

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Jackie and her son Ryan modelling one of her handcrafts.....NB:  It wasn’t her knitting it was the wool!

Beeswax Wraps – fundraising for Camp Purple Live

by Jackie Pigou - Parent

Meet Jackie Pigou. Jackie works tirelessly creating crafts and fundraising for Camp Purple Live!

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Laura running on her farm, training for the Pauanui event.

Laura Hancock is not usually one to talk about her journey living with Crohn's disease.

by Laura Hancock / Belinda Brown

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Val Clark's fabulous crafts for sale at the Taradale RSA Markets

Val Clark - Hawkes Bay Craft Market

by Belinda Brown

Val Clark has been fundraising for Camp Purple over the last few years.

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Rhys Rigione-Pisone - IBD Warrior

Rhys Rigione-Pisone is an IBD Warrior from the Hawkes Bay. During the month of May he decided to fundraise for CCNZ by doing 31 push-ups per day for the month of May.

by Rhys Rigione-Pisone / Belinda Brown

Rhys was diagnosed with Crohn’s disease when he was 15, back in 2011.

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Thank you to all our sponsors!

by Crohn's & Colitis New Zealand Charitable Trust

A complete list of all our sponsors, given the shear numbers, is impossible. But please know we are incredibly grateful to each and every one of you!

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