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Crohn's & Colitis New Zealand Charitable Trust

Moving On Newsletter - Autumn Edition 2020


From the Chair - Update

by Dr, Richard Stein, Chair

This is the second column I am writing for this issue.

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Dr Richard Stein - Chairman of Crohn's & Colitis NZ 

From the Chair

by Dr Richard Stein, Chair

For those who don’t know, at the conclusion of Camp Purple, over fifty children and twenty volunteers were stranded at Wellington Airport. The entire airport suddenly closed due to fog. Every flight was cancelled. Many of the children were on special diets, virtually all of them were on medications, all the checked luggage needed to be collected, parents needed to be notified, and seventy flights rebooked. We had no place to stay for the night and no food for the children. It had all the makings of an organisation’s worst nightmare.

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COVID-19 Update.

by Professor Andrew Day

There are several international efforts to record the patterns of COVID-19 in adults and children with IBD.

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Top 10 COVID-19 tips for everyone with IBD.

by Crohn's & Colitis New Zealand Charitable Trust

(Recommendations from the New Zealand Society of Gastroenterology)

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An introduction to blood tests commonly measured in children with IBD

by Professor Andrew Day

This aims to outline the key features of blood tests commonly used in children with IBD. It does not cover every test, or every situation.

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Interview with Adrian Douglas of the Freemason's, discovering what the Freemason's are and why they chose to support Camp Purple Live.

by Adrian Douglas, Freemasons New Zealand

Adrian Douglas joined freemasonry in 1999 and is a Past Master (Chairman) of New Zealand Pacific Lodge No.2 in Johnsonville, Wellington. He is also a member of the Freemasons Charity Management Committee.

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Rocky, nestled in with the other Rickshaws ready to head off on an exciting 2 week challenge

3Ply's story about racing across India in a rickshaw to raise funds for Camp Purple Live 2020: Will they do it again?

by Emily Spink

The reactions to the news that two fellow crohnies and I would attempt to drive a rickshaw 3000km through India were priceless.

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Lisa Griffith's receiving the Nurses Travel Award at the Annual Scientific Meeting of the New Zealand Society of Gastroenterology.

IBD Nursing: The role of the IBD Nurse:

by Lisa Griffiths, IBD Nurse Wellington

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Hannah with her beloved dog.

The logistics of the many diets at Camp Purple Live 2020.

by Hannah Morton, Camp Purple Live Committee Member

“What is Inflammatory Bowel Disease (IBD)”? This is what I said when my current PhD supervisor and we were discussing possible research topics. I was given a basic overview of both Crohn’s disease and ulcerative colitis and went away to do a little research myself.

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Nicole Thornton and Allyson Bain

Annual Scientific Meeting for the New Zealand Society of Gastroenterology.

by Dr Malcolm Arnold, President of NZSG.

As the President of the New Zealand Society of Gastroenterology (NZSG), it was my privilege and pleasure to introduce two very inspirational young women at our Annual Scientific Meeting in Wellington this past November.

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Nicole Thornton, Hon. Louisa Wall and Allyson Bain right after Ally and Nicole's presentation at the ASM.

Ally Bain Visit to NZ / I Can't Wait Campaign

by Dr Richard Stein, Chair

On November 27, Allyson (Ally) Baine, JD, a lawyer for the American Civil Liberties Union (ACLU) in the United States, and Nicole Thornton, 14 year old CCNZ Youth Ambassador, jointly addressed over 400 medical professionals in Wellington.

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Belinda Brown and Richard Stein at the Wellington Zoo - January 2020

Belinda Brown our new Operations Manager

by Dr. Richard Stein, Chair

Belinda Brown wears many hats:

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Colleen Flemmer has been a
huge supporter of Camp Purple Live since her son attended in 2016.  

Camp Purple Live 2020 - Parents Seminar

by Colleen Flemmer, Camp Purple Live Committee Member

For those of you that joined us for the parent seminar this year, a massive thank you for a) trusting the team with your children for a week long camp and b) for making the huge effort to get yourselves there. As a parent myself I know what a mission this is to organise, especially if there are other siblings in the house (and/or pets) and juggling work schedules.

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Megan Mackay - Winner of the 2018 Nurses Travel Award sponsored by Abbvie

Nurses Travel Award 2019

by Megan McKay, IBD Nurse

I am the IBD Nurse for Hutt Valley DHB and was lucky enough to win the CCNZ Travel Award in November 2018.

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Thank you to all our sponsors!

by Crohn's & Colitis New Zealand Charitable Trust

A complete list of all our sponsors, given the shear numbers, is impossible. But please know we are incredibly grateful to each and every one of you!

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