The announcement by Minister of Health Andrew Little on 22nd April promises major changes over the next few years.

On 2 December 2020, David Seymour, leader of the ACT party, received our petition asking Parliament to fund ustekinumab. The petition has over 30,000 signatures and now sits with Parliament’s Petition Committee who will determine its fate.

Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE-IBD) is an international, paediatric and adult database to monitor and report on outcomes of COVID-19 occurring in IBD patients.

On 2 December 2020 Radio NZ and the Dominion Post covered the launch of CCNZ Youth Ambassador Nicole Thornton’s “I Can’t Wait” campaign.

An eloquent quote from one of our young Camp Purple Live attendees from 2021 reads “It’s not the disease that defines you, but you that defines the disease.”

CCNZ commissioned economist Dame Suzanne Snively to analyse the economic impact of IBD in NZ. Her report entitled “Reducing the Growing Burden of IBD in New Zealand” was presented at a function held at Parliament in November 2017.

Traditionally, IBD clinics have been run via face-to-face consultations. However, over the last decade, the integration of telemedicine into clinical care has gained momentum and the Covid pandemic has led many healthcare providers to consider alternative modalities for service provision.

Meet Samantha Wilkinson, the new Gastroenterology Clinical Nurse Specialist, who covers IBD and also Hepatitis C, for Lakes District Health Board.

My name is Fletcher Carey and I have Crohn's disease. I was diagnosed when I was 8 years old and I'm turning 18 this year.

World IBD Day is the 19th of May 2021, so in celebration of this day we are planning an event at Parliament for the evening of the 24th of May 2021. Save this date and join us in celebrating World IBD Day! More details will follow soon!

One of the key components of the Camp Purple Live program is the Parents Seminar.

Save the date! 30th of July 2021 to the 1st of August 2021.

Emma Taylor is from Wellington and was diagnosed with ulcerative colitis in March 2015. Since then, she's had 3 surgeries, and now lives permanently with a J Pouch. Emma enjoys camping, fishing, exploring nature and doing the odd project around the house.

Hello, I am Danielle Le Heron and the coordinator for the Waikato CC Support Group since 2019.

Susan Wenzler has kindly volunteered to become the new coordinator for the Rotorua group. Here's a little about Susan.

Bianca Howe is Assistant Buyer at Shine On and has been in the position for nearly a year. Bianca is also an IBD patient.

Would you like to come and experience Camp Purple Live for a day?

CCNZ appreciates and thanks the IBD professional community for all their support.

CCNZ works across the country to improve the lives of people affected by IBD, but we're only able to get there with your help and support.

CCNZ are working hard to ensure that the support groups are all getting active and supporting their communities. If you are feeling up to it, please head along to an event, your community would love to meet you!

If you're in Melton this weekend, make sure you pop along and support Market@254 and support CCNZ!