Organisation logo

Crohn's & Colitis New Zealand Charitable Trust

Moving On Newsletter - Christmas 2023

Contents

Happy Holidays!

Chair's column

by Dr Richard Stein - Chair, Crohn's and Colitis New Zealand Charitable Trust

Visit this article
Associate Professor Catherine Steadman, current NZSG President and Dr Richard Stein at the recent ASM in Rotorua.

Celebrating Dr. Richard Stein's success!

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

In the hustle and bustle of our daily lives, it's easy to overlook the silent heroes who work tirelessly to lay the foundations of success. Today, let's take a moment to shine a bright light on the humility and dedication of our very own Dr. Richard Stein.

Visit this article
Professor Andrew Day with his Kiwibank Local Hero medal

Another representative for CCNZ and Camp Purple, Professor Andrew Day recognised as a Kiwibank Local Hero Medallist.

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

Visit this article
Winner of the award Carissa Jackson, IBD Nurse Wellington Hospital.

Exciting News: Winner of the Nurses Travel Award!

by Belinda Brown - CEO, Crohn's & Colitis New Zealand Charitable Trust

We are thrilled to announce the recipient of the 2023 Nurses Travel Award! This is a $5000 award to attend an International Conference, where the focus is on best treatment, research, and advances in Inflammatory Bowel Disease (IBD).

Visit this article

The Importance of Being in Remission Before Considering a Pregnancy and What Your IBD Team Can Do for You

by Dr Sophia Savva - Gastroenterologist

Pregnancy is an exciting journey, and for individuals with Inflammatory Bowel Disease (IBD), being in remission before conception is crucial. In this article, we aim to provide some guidance for those with IBD who are planning to start a family or are already expecting.

Visit this article
Professor Richard Gearry

JAK inhibitors for IBD – an exciting new approach to managing IBD

by Professor Richard Gearry - University of Otago, Christchurch Te Whatu Ora, Waitaha Medical Advisor CCNZ

Inflammatory bowel disease (IBD) continues to become more prevalent in NZ. Current work being undertaken by Angela Forbes (PhD student at the University of Otago, Christchurch) suggests that there are more than 4,000 patients living with IBD in Canterbury alone. If these numbers were to be extrapolated to include all of New Zealand, over 40,000 people may be living with IBD in our small country.

Visit this article
All
our campers and volunteers dressed for the Carnival Day in their group colours.

Camp Purple Live 2024: A Spectacular Adventure at El Rancho, Waikanae

by Belinda Brown - CEO, Crohn's & Colitis New Zealand

With 2024 approaching quickly, there's one event on the horizon that is eagerly awaited by campers, volunteers and families alike – Camp Purple Live.

Visit this article
All about food and IBD.

All about food and IBD.

by Dr Angharad Hurley, Mrs Stephanie Brown, Professor Andrew Day University of Otago (Christchurch)

People with IBD can have a love/hate relationship with food. But everyone has different foods that can make them feel better or worse, cause symptoms or provide relief. However, there are different types of food that commonly help or hinder many with IBD, due to the way they interact with the body. When food is broken down in the gut, the byproducts are the fuel for our microbiome (the bugs that live in our gut and directly interact with the immune system). These different foods can be described as pro-inflammatory, anti-inflammatory or trigger foods.

Visit this article
Dr John Wyeth – Gastroenterologist at Bowen Hospital and Wairarapa Hospital.

The IBD Nurse in the Private and Rural Sectors

by Dr John Wyeth – Gastroenterologist at Bowen Hospital and Wairarapa Hospital; Fran Adams – IBD and Endoscopy Nurse at Bowen Hospital; Wuss Harvie – Manager Infusion Services and IBD Nurse at Wairarapa Hospital

Inflammatory Bowel Disease (IBD) is a chronic, recurring, and often debilitating condition affecting thousands of people in New Zealand. It doesn’t always respond to treatment as well as we would like, leading to ongoing symptoms with reduction in quality of life. The good news is that studies have shown access to a specialist IBD nurse can make a very real difference in patient outcomes.

Visit this article
Catherine Wall PhD NZRD – IBD Dietitian (Christchurch) and Research Fellow, Department of Medicine, University of Otago Christchurch

Christmas Classic with a Twist!

by Dr Catherine Wall, PhD NZRD - Research Fellow, Department of Medicine, University of Otago (Christchurch)

Your IBD is in remission, great! But you are still having multiple loose bowel motions, especially in the morning when you are trying to leave the house for the day. You may also have excess gas or bloating. You are not alone. At least 30% of people with IBD report ongoing gut symptoms even when their IBD is in remission.

Visit this article

NZ IBD Patient’s Postcode Lottery access to Gastroenterologists and Specialist Nurses

by Dr Richard Newbury - Gastroenterologist Rotorua Hospital

Written by - Dr Richard Newbury, Gastroenterologist Rotorua Hospital.

Visit this article
Nicole Thornton, now training to be a Nurse at the University of Otago.

Neglecting your IBD - from a personal teenage perspective

by Nicole Thornton - CCNZ Ambassador

Melodramatic, wondrous, theatrical, loud - these were all fitting adjectives to describe my personality as a kid. 'Over-dramatic' also fitted the criteria, but not when I was referring to the severe pain of my underlying disease.

Visit this article
Crohn's Colitis Cure

Codesign and consultation ensuring consumer needs are met: Building an eHealth platform for Children with IBD.

by Joseph Pipicella - Crohn’s Colitis Cure, Sydney

We are excited to share insights from a recent study that many of you may have participated in, contributing valuable perspectives that have shaped the outcome of this research.

Visit this article
Kade West-Hill

A Journey from Patient to Coordinator - Meet Kade West-Hill, Whangārei's New Crohn’s and Colitis Support Group Coordinator

by Kade West-Hill - Whangārei Crohn's & Colitis Support Group Coordinator.

Meet Kade West-Hill - an 18-year-old with a relentless spirit and the newly appointed Coordinator of the Whangārei Crohn’s and Colitis Support Group.

Visit this article

Jasneel Deo's commitment to the EFCCA "Leaders of Tomorrow" Youth Academy Program

by Jasneel Deo - CCNZ Volunteer

Jasneel Deo recently embraced the opportunity to contribute to the EFCCA "Leaders of Tomorrow" Youth Academy program. Below, he has shared his insights into the valuable lessons he has gained so far.

Visit this article

From Teenager to Triathlete: My Battle with Crohn's Disease and the Journey to Reclaiming Life

by Keefe Stephens - Fundraiser

Read Keefe's article detailing his Crohn's disease journey which began at the age of fifteen. His journey ultimately culminates in an inspiring triumph of hope and awareness, as he endeavours to raise funds for CCNZ.

Visit this article
Celebrating victory at the finish line, the incredible Neill family captures the essence of unity and triumph in this unforgettable moment.

From lockdown challenge to family marathon: Donovan Neill's inspiring journey for CCNZ

by Donovan Neil - Fundraiser

In December 2021, when we initially explored Donovan Neill's motivation to fundraise for CCNZ, little did we anticipate that his dedication would transform into a remarkable family-wide running initiative.

Visit this article

Highlights from the 9th Annual Parents and Caregivers Seminar

by Belinda Brown - CEO, Crohn's & Colitis New Zealand

This year we hosted our ninth annual Parent and Caregiver's Seminar. The decision to separate it from our regular camp activities and condense it into a single day was made by our camp committee for several reasons.

Visit this article
Tom Newman - Fundraising for CCNZ

From 5km to 42km: My Marathon Journey for Crohn's and Colitis NZ

by Tom Newman - Fundraiser and Patient

In this article, Tom Newman shares his inspiring journey of preparing for his first marathon on 29 October 2023, despite never having run more than 5km before!

Visit this article
The Giving Circle is a group of anonymous donors who established the IBD Computer Scholarship Award in 2020 to benefit young people with Inflammatory Bowel Disease.

Empowering New Zealand Students with IBD: Applications Now Open for the 2024 Giving Circle Scholarship Award.

by Crohn's Colitis

We are excited to announce that applications are now open for the 2024 Giving Circle Scholarship Award.

Visit this article
Steve Cowan - set to take on the Kerikeri half marathon

Running for a cause!

by Steve Cowan - Fundraiser

Steve, Alex's father, is lacing up his running shoes to raise funds and awareness for Camp Purple. Read about their journey and how Steve's turning his passion for running into something positive.

Visit this article

Our Professional Members 2023.

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ appreciates and thanks the IBD professional community for all their support.

Visit this article
Crohn's and colitis support groups

Want to find your nearest support group?

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ are working hard to ensure that the support groups are getting active and supporting their communities. If you are feeling up to it, head along to an event. Your community would love to meet you!

Visit this article
We are looking for volunteers to help with these Support Groups.

WE NEED YOUR HELP!

by Belinda Brown, CEO - Crohn's & Colitis New Zealand Charitable Trust

Visit this article

TOGETHER, WE CAN MAKE A DIFFERENCE!

by Crohn's & Colitis New Zealand Charitable Trust

CCNZ works across the country to improve the lives of people affected by IBD, but we're only able to get there with your help and support.

Visit this article
Thank you to all our Kind and generous supporters!

Expressing our gratitude to our valued supporters.

by Crohn's & Colitis New Zealand Charitable Trust

Visit this article
The new and improved Living with IBD Handbook!

Our new and revised Living with IBD handbook is out now!

by Crohn's & Colitis New Zealand Charitable Trust

Visit this article